Websites linking back to orpha.net
55 websites are linking back to orpha.net in their content.
Total results: 55
Domains on this page: 55
Results:
Home | European Lung Foundation - ELFhttp://portalrankings.com/info/european-lung-foundation.org
- Google Analytics code: 27714158-9
- Updated On (Date): 2015-Sep-08
- Expiration time: 2017-Sep-01
- Website Registered On (Date): 2005-Sep-01
Actualidad EPFhttp://portalrankings.com/info/pocofrecuentes.org
INDEPF
- Updated On (Date): 2018-Jan-16
- Expiration time: 2019-Feb-04
- Website Registered On (Date): 2016-Feb-04
Behbod Darou | Homehttp://portalrankings.com/info/behboddarou.com
- Updated On (Date): 2016-Feb-27
- Expiration time: 2021-Aug-02
- Website Registered On (Date): 2008-Aug-02
NEUROINFORMAÇÃOhttp://portalrankings.com/info/neuroinformacao.blogspot.it
- Google+ User ID: 103294611727804184325
- ID for Google Adsense: ca-pub-1556223355139109
The Potchefstroom Laboratory for Inborn errors of Metabolismhttp://portalrankings.com/info/pliem.co.za
The Laboratory for Inborn Errors of Metabolism - PLIEM, NWU, Potchefstroom is the only diagnostic laboratory of its kind in South Africa where screening for metabolic diseases are performed.
- Google Analytics code: 57160315-1
- Updated On (Date): 2017-Aug-28
- Expiration time: 2018-Jun-04
- Website Registered On (Date): 2010-Jun-04
Fundación Noelia |http://portalrankings.com/info/fundacionnoelia.org
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- Google Analytics code: 92263549-1
NEUROINFORMAÇÃOhttp://portalrankings.com/info/neuroinformacao.blogspot.com.br
- Google+ User ID: 103294611727804184325
- ID for Google Adsense: ca-pub-1556223355139109
What is Orthostatic Tremorhttp://portalrankings.com/info/orthostatictremor.org
- Google Analytics code: 25347166-1
- Updated On (Date): 2016-Jan-19
- Expiration time: 2017-Nov-29
- Website Registered On (Date): 2000-Nov-29
AMSAO - Accueilhttp://portalrankings.com/info/amsao.fr
Association des Malades Souffrant d'Angioedèmes - France
Ensemble contre FPI – Accompagner les patients atteints de Fibrose Pulmonaire Idiopathiquehttp://portalrankings.com/info/ensemblecontrefpi.fr
La fibrose pulmonaire idiopathique, ou FPI, est une maladie grave et relativement rare, qui s’attaque aux poumons et affecte la respiration au quotidien. Si vous, ou quelqu’un qui vous est cher, êtes affecté(e) per la FPI, informez-vous dès aujourd’hui sur la FPI.
- Updated On (Date): 2017-Oct-16
- Expiration time: 2018-Aug-04
- Website Registered On (Date): 2016-Aug-04
NEUROINFORMAÇÃOhttp://portalrankings.com/info/neuroinformacao.blogspot.pt
- Google+ User ID: 103294611727804184325
- ID for Google Adsense: ca-pub-1556223355139109
Ectodermal Dysplasia Societyhttp://portalrankings.com/info/ectodermaldysplasia.org
- Updated On (Date): 2017-Sep-14
- Expiration time: 2018-Sep-21
- Website Registered On (Date): 2000-Sep-21
FG Syndrome Family Alliancehttp://portalrankings.com/info/fgsyndrome.org
FG Syndrome is an X-linked genetic syndrome, believed to affect both boys and girls; which causes a variety of physical anomolies, developmental delays, and special health needs.
Pyruvate Kinase Deficiency | Understanding and living with PKDhttp://portalrankings.com/info/pyruvatekinasedeficiency.com
If you or a family member have been diagnosed with Pyruvate Kinase Deficiency, you probably have many questions running through your head. What kind of disease is it? Will I or my family member be able to live a normal life? What precautions should I take? The mission of this website is to answer your questions.…
- Google Analytics code: 52447-2
- Updated On (Date): 2017-Nov-15
- Expiration time: 2019-Jan-14
- Website Registered On (Date): 2015-Jan-14
Systemic Body Odor Bloghttp://portalrankings.com/info/systemicbodyodor.blogspot.com
A blog about systemic/metabolic body odor/halitosis, fecal body odor, metabolic malodors, trimethylaminuria, tmau, fish odor syndrome.
- ID for Google Adsense: ca-pub-1556223355139109
中国国家罕见病注册体系http://portalrankings.com/info/nrdrs.org
中国首个国家级罕见病注册平台，“十三五”重点项目，为广大罕见病研究者提供一个权威、可靠的共享平台。
- Updated On (Date): 2017-Jun-01
- Expiration time: 2019-Nov-25
- Website Registered On (Date): 2016-Nov-25
MEBO RESEARCHhttp://portalrankings.com/info/meboresearch.org
- Google Analytics code: 37051913-1
- Updated On (Date): 2017-Mar-12
- Expiration time: 2017-Jun-03
- Website Registered On (Date): 2010-Jun-03
Antisèches de consultation en médecine générale | Médecin généraliste en voie de sédentarisation, je mets à votre disposition ces antisèches destinées à pallier mes lacunes. Ici je vais pouvoir ranger tout ce qui me sert au quotidien. Chères consœurs, chers confrères, ami(e)s, patient(e)s ou passant(e)s, servez-vous!http://portalrankings.com/info/antiseche.wordpress.com
Médecin généraliste en voie de sédentarisation, je mets à votre disposition ces antisèches destinées à pallier mes lacunes. Ici je vais pouvoir ranger tout ce qui me sert au quotidien. Chères consœurs, chers confrères, ami(e)s, patient(e)s ou passant(e)s, servez-vous!
- Google Analytics code: 52447-2
orpha.nethttp://portalrankings.com/info/orpha.net
- Updated On (Date): 2017-Feb-23
- Expiration time: 2022-Apr-03
- Website Registered On (Date): 2000-Apr-03
ROMSEhttp://portalrankings.com/info/romse.org
Register für Orofaziale Manifestationen bei Menschen mit seltenen Erkrankungen
- Updated On (Date): 2018-Jan-06
- Expiration time: 2019-Jan-07
- Website Registered On (Date): 2013-Jan-07
Génétique médicale, agence de la biomédecinehttp://portalrankings.com/info/genetique-medicale.fr
L'agence est un établissement public national de l'État exercant ses missions dans les domaines du prélèvement et de la greffe d'organes, de tissus et de ...
- Known AddThis user account ID: xa-527cd9d153417765
GeneTests - Homehttp://portalrankings.com/info/genetests.org
a medical genetics information resource for physicians, genetic counselors, healthcare providers and researchers
- Google Analytics code: 42638813-1
- Updated On (Date): 2016-Sep-08
- Expiration time: 2018-Sep-07
- Website Registered On (Date): 1998-Sep-08
CRE Enfermedades Raras. Centro de Referencia Estatal de Atención a Personas con Enfermedades Raras y sus Familias de Burgos :: Iniciohttp://portalrankings.com/info/creenfermedadesraras.es
El Centro de Referencia Estatal de Atención a Personas con Enfermedades Raras y sus Familias de Burgos (Creer) del Imserso en Burgos se configura como un centro avanzado en la promoción, desarrollo y difusión de conocimientos, experiencias innovadoras y métodos de atención social a personas con enfermedades raras o poco frecuentes, y de alta especialización en servicios sociales de apoyo a familias y cuidadores y en servicios de prevención, promoción de la autonomía personal y participación social de las personas con dichas enfermedades.
- Google Analytics code: 2164881-29
Gratuit, culture, PDF, ebooks, loisirs, bons planshttp://portalrankings.com/info/bookinalex.net
Toute le gratuit du web, PDF a telecharger, ebooks, culture, arts, loisirs, bons plans
- Google+ User ID: 116253460386414408854
- ID for Google Adsense: ca-pub-72489155907044
- Google Analytics code: 7528380-1
- Updated On (Date): 2017-Feb-15
- Expiration time: 2018-Feb-14
- Website Registered On (Date): 2004-Feb-14
Speed Donatinghttp://portalrankings.com/info/speeddonating.com
16 people will die today across Europe because they failed to find their match in time. If you’re not already, sign up to become a donor and share our speed donating campaign. Please help us raise awareness of organ donation and save lives.
- Google Analytics code: 105713918-1
- Updated On (Date): 2017-Aug-09
- Expiration time: 2018-Aug-09
- Website Registered On (Date): 2017-Aug-09
Salute e Benessere - a cura della Dott.ssa Viola Dantehttp://portalrankings.com/info/salute-e-benessere.org
Salute e Benessere è uno spazio web curato dalla Dott.ssa Viola Dante, che pubblica notizie ed approfondimenti sulla salute dell'uomo e della donna.
- Google+ User ID: +Salute-e-benessereOrg
- ID for Google Adsense: ca-pub-7642034554976828
- Google Analytics code: 6671075-10
- Updated On (Date): 2017-May-06
- Expiration time: 2025-Jun-21
- Website Registered On (Date): 2012-Jun-21
Esprit Scientifiquehttp://portalrankings.com/info/espritscientific.blogspot.ch
- Google+ User ID: 102169478188366307764
- ID for Google Adsense: ca-pub-1556223355139109
Institut national de la santé et de la recherche médicalehttp://portalrankings.com/info/inserm.fr
Institut national de la santé et de la recherche médicale
- Google+ User ID: 105272571729275734657
- Google Analytics code: 35345310-1
- Updated On (Date): 2016-Dec-31
- Expiration time: 2017-Dec-31
- Website Registered On (Date): 1995-Jan-01
EURORDIS - The Voice of Rare Disease Patients in Europehttp://portalrankings.com/info/eurordis.org
EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 745 rare diseases patient organisations in 65 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe
- Google+ User ID: 114387522754314829925
- Google Analytics code: 4015132-1
- Updated On (Date): 2016-Dec-21
- Expiration time: 2017-Nov-23
- Website Registered On (Date): 2000-Nov-23
Blog de tous les PMSI, de la T2A MCO et de la DMA SSRhttp://portalrankings.com/info/t2a-conseil.com
T2A Conseil vous donne des informations et des analyses sur les PMSI MCO, PMSI SSR, PMSI PSY, la T2A MCO, la DMA SSR, le pilotage d\'établissement et la
- Google Analytics code: 23205324-1
- Updated On (Date): 2017-May-03
- Expiration time: 2018-Dec-17
- Website Registered On (Date): 2010-Dec-17
Novilunio -http://portalrankings.com/info/novilunio.net
- Google Analytics code: 53060937-1
- Updated On (Date): 2017-Mar-09
- Expiration time: 2019-Jul-01
- Website Registered On (Date): 2013-Jul-01
Homehttp://portalrankings.com/info/shg-vaskulitis-eifel-mosel.de
Willkommen auf der Website der Selbsthilfegruppe Vaskulitis e.V.Wir sind für Sie da und helfen Ihnen bei Ihrer Vaskulitiserkrankung.Informieren Sie sich auf unserer Website über verschiedene Vaskulitiden.
- Updated On (Date): 2011-Mar-17
AInotes - homehttp://portalrankings.com/info/ainotes.wikispaces.com
- Google Analytics code: 80504-1
CUTIS LAXA INTERNATIONALEhttp://portalrankings.com/info/cutislaxa.org
Page d'accueil
- Updated On (Date): 2017-Sep-18
- Expiration time: 2021-Sep-20
- Website Registered On (Date): 2004-Sep-20
Société de Pneumologie de Langue Françaisehttp://portalrankings.com/info/splf.org
- Google Analytics code: 59175874-1
- Updated On (Date): 2017-Apr-23
- Expiration time: 2018-Apr-28
- Website Registered On (Date): 1998-Apr-29
Centre de référence des Maladies Vasculaires Rares - APHPhttp://portalrankings.com/info/maladies-vasculaires-rares.fr
Le CRMVR regroupe 39 hôpitaux et centres de compétence en France et permet l'accueil et le traitement des patients atteints de maladies vasculaires rares.
- Google Analytics code: 80836311-1
FEMEXER – Federación Mexicana de Enfermedades Rarashttp://portalrankings.com/info/femexer.org
Federación Mexicana de Enfermedades Raras
- Google+ User ID: +FemexerOrg_fanpage
- Updated On (Date): 2017-Mar-11
- Expiration time: 2018-Mar-16
- Website Registered On (Date): 2011-Mar-16