Websites linking back to geneticalliance.org

RareConnect promotes global conversation and collaboration to improve the lives of rare disease patients and assist the organizations that serve them. RareConnect is an online social network for patients and families who live with one of over 6,000 rare diseases to connect with one and other to support and share vital experiences on aspects of living with a rare disease. Organized into disease specific communities, the platform also provides links to quality information, clinical trials and research publications and provides an opportunity for international networking and collaboration between patient organizations.

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Medically accurate, up-to-date information about the periodic paralyses accessible to patients, caretakers and physicians.

Flip the Clinic is a project of the Robert Wood Johnson Foundation to re-imagine the medical encounter between patients and clinicians.

Rare Disease UK (RDUK) is the national campaign for people with rare diseases and all who support them. We believe that everyone living with a rare disease should be able to receive high quality services, treatment and support.

We have developed life changing medicines, but the cost of these treatments drive 100 million people below the poverty line every year. We can fix this.

The website for Alstrom Syndrome International is meant to provide information and resources for those affected by Alstrom Syndrome as well as raise awareness.

Genetic Alliance UK is the national charity working to improve the lives of patients and families affected by all types of genetic conditions.

We are a support group and charity concerned with the rare genetic condition aniridia – which causes a lack of irises (the coloured ring) in the eyes and poor vision from birth. Since 2001 Aniridia Network UK has been helping people with aniridia as well as their families, doctors and teachers to be: hopeful, confident,…

The home page for GeneMatcher