Websites linking back to rarediseaseday.org

Improved Solutions for Metabolic Diseases

At ARG, we connect individuals with rare diseases to organizations driven to develop potential treatments. We advance smarter clinical trials.

Rare disease information gateway, support groups directory, practical advice, health and disability resources, research information, news and issues.

Cytokinetics develops first-in-class muscle activators as potential treatments for debilitating diseases in which muscle performance is compromised.

RareConnect promotes global conversation and collaboration to improve the lives of rare disease patients and assist the organizations that serve them. RareConnect is an online social network for patients and families who live with one of over 6,000 rare diseases to connect with one and other to support and share vital experiences on aspects of living with a rare disease. Organized into disease specific communities, the platform also provides links to quality information, clinical trials and research publications and provides an opportunity for international networking and collaboration between patient organizations.

Enzyvant is a biopharmaceutical company focused on the development of transformative therapies for rare diseases with high unmet needs.

A Farm Mom's Perspective

Join the National Organization for Rare Disorders (NORD) in raising awareness for the 30 million patients with rare diseases in the U.S. on Rare Disease Day®.

A UK IPF charity focused on improving the quality of life for pulmonary fibrosis patients and funding research.

The largest keratoconus support community and blog

The Cystinosis Research Network is a volunteer, non-profit organization dedicated to supporting and advocating research, providing family assistance and educating the public and medical communities about cystinosis.

Спинальная мышечная атрофия, помощь, информационная поддержка регистры международные Украинский Spinal muscular atrophy SMA Registry

An adult fiction book blog where I write reviews about my opinion of the books I read!

Organizácia muskulárnych dystrofikov je nezisková organizácia s celoslovenskou pôsobnosťou.

Bienvenidos a la web oficial de FMF España, la Asociación de enfermos de Fiebre Mediterránea Familiar de España.

EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 745 rare diseases patient organisations in 65 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe