Websites linking back to undiagnosed.org.uk

Rare Disease UK (RDUK) is the national campaign for people with rare diseases and all who support them. We believe that everyone living with a rare disease should be able to receive high quality services, treatment and support.

Genetic Alliance UK is the national charity working to improve the lives of patients and families affected by all types of genetic conditions.

Parenting complex kids with a healthy dose of advocacy, optimism and inappropriate humour. All attempts to change the world on hold until they're in bed.